Friday, May 11, 2012
I know there are some people who are following C's progress only through the blog, so I do apologize for the lack of updates. We did finally make it home on Friday, May 4. C was in the hospital another 8 days after we were first told that we would be discharged. I have a lot of mixed emotions right now and I just have not had the energy or desire to write about C's progress. I will keep working as I do want to finish the posts on the rest of C's journey post Fontan as I really like to have a journal of what she went through. However, we are home. C is getting better and stronger each day. Her body is slowly adapting to her new physiology and starting to stop producing fluid. But, she is still on 1 liter of oxygen as her oxygen saturations remain severly low. I cannot even get into that right now but know that all the prayers and well wishes have and are working because C is home and doing much, much better.
Posted by Ashley at 10:02 AM